Journal of Patient-Reported Outcomes: 2023, vol: 7, issue: 1
- 1)- Maria Samuelsson, Anne Wennick, Mariette Bengtsson, Marie-Louise Lydrup, Jenny Jakobsson. Translation, cultural adaptation, and psychometric testing of the Supportive care needs survey for partners and caregivers for Swedish family members of persons diagnosed with colorectal cancer. Journal of patient-reported outcomes. 2023, 7 (1): 100
Cited : 0Read More - 2)- Sandra Weidlich, Jens Pfeiffer, Christiane Kugler. Self-management of patients with tracheostomy in the home setting: a scoping review. Journal of patient-reported outcomes. 2023, 7 (1): 101Cited : 0Read More
- 3)- Zorana Zupan. Cognitive performance outcomes: considerations for drug development. Journal of patient-reported outcomes. 2023, 7 (1): 102Cited : 0Read More
- 4)- Stine Primdahl Rasmussen, Liv Marit Valen Schougaard, Niels Henrik Hjøllund, David Høyrup Christiansen. Patient-reported outcome measures as determinants for the utilization of health care among outpatients with epilepsy: a prognostic cohort study. Journal of patient-reported outcomes. 2023, 7 (1): 103Cited : 1Read More
- 5)- Helena Bradley, Claire Trennery, Amy M Jones, Aoife Lydon, Frances White, Rebecca Williams-Hall, Rob Arbuckle, Erin Tomaszewski, Vivian H Shih, John Haughney, Amanda Eisen, Tonya Winders, Stephen Joel Coons, Sonya Eremenco, . Assessing asthma symptoms in children: qualitative research supporting the development of the Pediatric Asthma Diary-Child (PAD-C) and Pediatric Asthma Diary-Observer (PAD-O). Journal of patient-reported outcomes. 2023, 7 (1): 104Cited : 0Read More
- 6)- Valerie Williams, Carla Romano, Marci Clark, Dane Korver, Nikki Williams, Diana Goss, Christel Naujoks, Jessica Marvel. Psychometric evaluation of an electronic Asthma Symptom Diary for young children. Journal of patient-reported outcomes. 2023, 7 (1): 105Cited : 0Read More
- 7)- Lisa Lützow, Isabelle Teckenburg, Veronika Koch, Franz Marxreiter, Jelena Jukic, Sabine Stallforth, Martin Regensburger, Jürgen Winkler, Jochen Klucken, Heiko Gaßner. The effects of an individualized smartphone-based exercise program on self-defined motor tasks in Parkinson's disease: a long-term feasibility study. Journal of patient-reported outcomes. 2023, 7 (1): 106Cited : 1Read More
- 8)- Devashish Tiwari, Keshrie Naidoo, Emily Z Eddy, Naseem Chatiwala, Maninderjit Kaur. Development and validation of the activities and participation children and adolescents -neck (APCAN) measure. Journal of patient-reported outcomes. 2023, 7 (1): 107Cited : 0Read More
- 9)- Annemay M H Stoker, Angélique Gruters, Mirjam C M van der Ende-van Loon, Debby Postulart, Wladyslawa Czuber-Dochan, Lennard P L Gilissen. Translation, validation and psychometric properties of the Dutch version of the Inflammatory Bowel Disease-Fatigue (IBD-F) self-assessment scale. Journal of patient-reported outcomes. 2023, 7 (1): 108Cited : 0Read More
- 10)- Stefan Tino Kulnik, Johanna Gutenberg, Kathrin Mühlhauser, Tari Topolski, Rik Crutzen. Translation to German and linguistic validation of the Rapid Assessment of Physical Activity (RAPA) questionnaire. Journal of patient-reported outcomes. 2023, 7 (1): 109Cited : 3Read More
- 11)- Robin M Pokrzywinski, Bridgett Goodwin, Evan S Dellon, Ellyn Kodroff, Anne Brooks, Adam Bailey, James Williams, Nirav K Desai. Qualitative assessment of the suitability of the Dysphagia Symptom Questionnaire to monitor dysphagia in children aged 7-10 years with eosinophilic esophagitis. Journal of patient-reported outcomes. 2023, 7 (1): 110Cited : 0Read More
- 12)- Mikaela Vallmark, Anna Lena Brorsson, Carina Sparud-Lundin, Ewa-Lena Bratt, Philip Moons, Markus Saarijärvi, Mariela Acuña Mora. Development and psychometric evaluation of TEXP-Q: a questionnaire measuring transition and transfer experiences in emerging adults with type 1 diabetes. Journal of patient-reported outcomes. 2023, 7 (1): 111Cited : 0Read More
- 13)- David A Andrae, Rachael F Grace, Adrian Jewett, Brandon Foster, Robert J Klaassen, Sam Salek, Junlong Li, Feng Tai, Audra N Boscoe, Erin Zagadailov. Psychometric validation of the Pyruvate Kinase Deficiency Diary and Pyruvate Kinase Deficiency Impact Assessment in adults in the phase 3 ACTIVATE trial. Journal of patient-reported outcomes. 2023, 7 (1): 112Cited : 1Read More
- 14)- Susan K Parsons, Angie Mae Rodday, Qinglin Pei, Frank G Keller, Yue Wu, Tara O Henderson, David Cella, Kara M Kelly, Sharon M Castellino. Performance of the FACT-GOG-Ntx to assess chemotherapy-induced peripheral neuropathy (CIPN) in pediatric high risk Hodgkin lymphoma: report from the Children's Oncology Group AHOD 1331 study. Journal of patient-reported outcomes. 2023, 7 (1): 113Cited : 1Read More
- 15)- Kyle A Kemp, Paul Fairie, Brian Steele, Maria J Santana. Variation in parental experiences with their child's hospitalization over the COVID-19 pandemic. Journal of patient-reported outcomes. 2023, 7 (1): 114Cited : 0Read More
- 16)- Brian G Feagan, William J Sandborn, Bruce E Sands, Yan Liu, Marion Vetter, Susan D Mathias, Kuan-Hsiang Gary Huang, Jewel Johanns, Matthew Germinaro, Chenglong Han. Qualitative and psychometric evaluation of the PROMIS®-Fatigue SF-7a scale to assess fatigue in patients with moderately to severely active inflammatory bowel disease. Journal of patient-reported outcomes. 2023, 7 (1): 115Cited : 1Read More
- 17)- Huiming Xia, Brian P Booth, Yaning Wang, Chunling Fan, Vishal Bhatnagar, Paul Kluetz, Jeanne Fourie Zirkelbach. Use of patient-reported outcomes (PRO) data to complement exposure-response analysis in early clinical cancer drug development. Journal of patient-reported outcomes. 2023, 7 (1): 116Cited : 0Read More
- 18)- Caroline B Terwee. Common measures or common metrics? the value of IRT-based common metrics. Journal of patient-reported outcomes. 2023, 7 (1): 117Cited : 0Read More
- 19)- Elena Swift, Lisa Gibbs, Dinah Reddihough, Andrew Mackinnon, Elise Davis. Qualitative differences in perspective on children's quality of life between children with cerebral palsy and their parents. Journal of patient-reported outcomes. 2023, 7 (1): 118Cited : 1Read More
- 20)- Susan D Mathias, Laurie Burke, Hilary H Colwell, George Mensing, Will Savage, Hetanshi Naik. Development and content validation of a sunlight exposure diary in patients with erythropoietic protoporphyria. Journal of patient-reported outcomes. 2023, 7 (1): 119Cited : 1Read More
- 21)- Eilish McCann, Mirna Chehade, Jonathan M Spergel, Andrew Yaworsky, Tara Symonds, Jonathan Stokes, Sarette T Tilton, Xian Sun, Siddhesh Kamat. Validation of the novel Eosinophilic Esophagitis Impact Questionnaire. Journal of patient-reported outcomes. 2023, 7 (1): 120Cited : 2Read More
- 22)- Patricia Holch, Grace Turner, Anju D Keetharuth, E Gibbons, Kim Cocks, Kate L Absolom. The impact of COVID-19 on PRO development, collection and implementation: views of UK and Ireland professionals. Journal of patient-reported outcomes. 2023, 7 (1): 121Cited : 0Read More
- 23)- Rakesh Jain, Rajeev Ayyagari, Debbie Goldschmidt, Mo Zhou, Stacy Finkbeiner, Sam Leo. Impact of tardive dyskinesia on patients and caregivers: a survey of caregivers in the United States. Journal of patient-reported outcomes. 2023, 7 (1): 122Cited : 0Read More
- 24)- Amy L Tin, Mia Austria, Gabriel Ogbennaya, Susan Chimonas, Paulin Andréll, Thomas M Atkinson, Andrew J Vickers, Sigrid V Carlsson. Pain as bad as you can imagine or extremely severe pain? A randomized controlled trial comparing two pain scale anchors. Journal of patient-reported outcomes. 2023, 7 (1): 123Cited : 0Read More
- 25)- Richard Schmidt, Daniela Geisler, Daniela Urban, Rebecca Pries, Christina Franzisket, Christian Voigt, Galina Ivanova, Thomas Neumuth, Joseph Classen, Markus Wagner, Dominik Michalski. Stroke survivors' preferences on assessing patient-reported outcome measures. Journal of patient-reported outcomes. 2023, 7 (1): 124Cited : 1Read More
- 26)- Mirjam van der Ende-van Loon, Dorinde Korteling, Hilde Willekens, Monique Schilders, Wouter Curvers, Raf Bisschops, Erik Schoon, Caroline Terwee. Dutch-Flemish translation and validation of the gastrointestinal symptom scales from the patient‑reported outcomes measurement information system (PROMIS). Journal of patient-reported outcomes. 2023, 7 (1): 125Cited : 0Read More
- 27)- Bishnu Bajgain, Sarah Rabi, Sadia Ahmed, Veronika Kiryanova, Paul Fairie, Maria J Santana. Patient-reported experiences and outcomes of virtual care during COVID-19: a systematic review. Journal of patient-reported outcomes. 2023, 7 (1): 126Cited : 1Read More
- 28)- Peter P Groenewegen, Peter Spreeuwenberg, Alastair H Leyland, Dolf de Boer, Wienke Boerma. Case-mix adjustments for patient reported experience and outcome measures in primary care: an empirical approach to identify patient characteristics as case-mix adjusters based on a secondary analysis of an international survey among patients and their general practitioners in 34 countries. Journal of patient-reported outcomes. 2023, 7 (1): 127Cited : 2Read More
- 29)- Emma Brinkley, Kendall Knuth, Tom Kwon, Christina Mack, Heidi Leister-Tebbe, Weihand Bao, Matthew W Reynolds, Nancy Dreyer. Daily COVID-19 symptom assessment over 28 days - findings from a daily direct-to-patient registry of COVID-19 positive patients. Journal of patient-reported outcomes. 2023, 7 (1): 128Cited : 1Read More
- 30)- Victoria Brown, Elizabeth Merikle, Kelly Johnston, Katherine Gooch, Ivana Audhya, Linda Lowes. A qualitative study to understand the Duchenne muscular dystrophy experience from the parent/patient perspective. Journal of patient-reported outcomes. 2023, 7 (1): 129Cited : 2Read More
- 31)- Anna Hundt Golden, Meghan Hufstader Gabriel, Jon Russo, Mark Price, Stephen Ruhmel, Ami Nilsson, Patricia Shepherd Delong, Jennifer Jelsma, Michelle Carty. Let's talk about it: an exploration of the comparative use of three different digital platforms to gather patient-reported outcome measures. Journal of patient-reported outcomes. 2023, 7 (1): 130Cited : 1Read More
- 32)- Samuel A Florentino, Suzanne B Karan, Gabriel Ramirez, Judith F Baumhauer. Evaluating medical students' knowledge of patient-reported outcomes and the impact of curriculum intervention in consecutive cohorts. Journal of patient-reported outcomes. 2023, 7 (1): 131Cited : 1Read More
- 33)- Ivana F Audhya, Shelagh M Szabo, Andrea Bever, Fiona O'Sullivan, Daniel C Malone, David Feeny, Peter Neumann, Susan T Iannaccone, P Jayasinghe, Katherine L Gooch. Estimating health state utilities in Duchenne muscular dystrophy using the health utilities index and EQ-5D-5L. Journal of patient-reported outcomes. 2023, 7 (1): 132Cited : 0Read More
- 34)- Putri Zulmiyusrini, Muhammad Yamin, Muhadi Muhadi, Juferdy Kurniawan, Simon Salim. The validity and reliability of Indonesian version of atrial fibrillation effect on quality of life (AFEQT) questionnaire for atrial fibrillation patients. Journal of patient-reported outcomes. 2023, 7 (1): 133Cited : 0Read More
- 35)- Stacy Davis, Teresa Edwards, Lindsey Norcross, Sheri Fehnel, Amélie Beaudet, Marie Eckart, John Fastenau. Use of the National Cancer Institute Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events to assess treatment tolerability in pulmonary arterial hypertension: qualitative patient research findings in current and former users of oral selexipag. Journal of patient-reported outcomes. 2023, 7 (1): 134Cited : 1Read More
- 36)- Sebastian Eustaquio Martín Pérez, Isidro Miguel Martín Pérez, Ania Álvarez Sánchez, Paula Acosta Pérez, Eliana Rodríguez Alayón. Social support in low-income women with Fibromyalgia Syndrome from a sub-urban and peri-urban areas of Tenerife (Canary Islands, Spain): a mixed method study. Journal of patient-reported outcomes. 2023, 7 (1): 135Cited : 0Read More
- 37)- Kai Sun, Amanda M Eudy, Nathaniel Harris, David S Pisetsky, Lisa G Criscione-Schreiber, Rebecca E Sadun, Jayanth Doss, Megan E B Clowse, Jennifer L Rogers. Using PROMIS-29 to determine symptom burdens in the context of the Type 1 and 2 systemic lupus erythematosus (SLE) model: a cross sectional study. Journal of patient-reported outcomes. 2023, 7 (1): 136Cited : 1Read More
- 38)- Vivian C Villegas, Dianna L Bosak, Zurisadai Salgado, Michelle Phoenix, Natalie Parde, Rachel Teplicky, Mary A Khetani, . Diversified caregiver input to upgrade the Young Children's Participation and Environment Measure for equitable pediatric re/habilitation practice. Journal of patient-reported outcomes. 2023, 7 (1): 87Cited : 0Read More
- 39)- Lara N Ferreira, Luís N Pereira, Pedro L Ferreira. Health and well-being of the Portuguese citizens: impacts of the COVID-19. Journal of patient-reported outcomes. 2023, 7 (1): 88Cited : 1Read More
- 40)- Katie D Stewart, Louis S Matza, Hiren Patel, Kristina S Boye. Development of a patient-reported outcome (PRO) measure to assess patient perceptions of simplicity and complexity of treatment for type 2 diabetes. Journal of patient-reported outcomes. 2023, 7 (1): 89Cited : 0Read More
- 41)- Marina Zeldovich, Fabian Bockhop, Amra Covic, Isabelle Mueller, Suzanne Polinder, Ana Mikolic, Marjolein van der Vlegel, Nicole von Steinbuechel, . Factorial validity and comparability of the six translations of the Rivermead Post-Concussion Symptoms Questionnaire translations: results from the CENTER-TBI study. Journal of patient-reported outcomes. 2023, 7 (1): 90Cited : 1Read More
- 42)- Daniëlla M Oosterveer, Winke van Meijeren-Pont, Frederike van Markus-Doornbosch, Etienne Stegeman, Caroline B Terwee, Gerard M Ribbers, Thea Pm Vliet Vlieland. Translation and cross-cultural adaptation of the ICHOM standard set for stroke: the Dutch version. Journal of patient-reported outcomes. 2023, 7 (1): 91Cited : 0Read More
- 43)- Sacha Satram, Parima Ghafoori, Carolina M Reyes, Tom J H Keeley, Helen J Birch, Dimitra Brintziki, Melissa Aldinger, Elizabeth Alexander, Amanda Lopuski, Elias H Sarkis, Anil Gupta, Adrienne E Shapiro, John H Powers. Assessment of symptoms in COMET-ICE, a phase 2/3 study of sotrovimab for early treatment of non-hospitalized patients with COVID-19. Journal of patient-reported outcomes. 2023, 7 (1): 92Cited : 1Read More
- 44)- Carla Vlooswijk, Silvie H M Janssen, Lonneke V van de Poll-Franse, Rhodé Bijlsma, Suzanne E J Kaal, J Martijn Kerst, Jacqueline M Tromp, Monique E M M Bos, Roy I Lalisang, Janine Nuver, Mathilde C M Kouwenhoven, Winette T A van der Graaf, Olga Husson. Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue. Journal of patient-reported outcomes. 2023, 7 (1): 93Cited : 0Read More
- 45)- Kristine Bissenbakker, Volkert Siersma, Alexandra Brandt Ryborg Jønsson, Anne Møller, Karl Bang Christensen, John Brandt Brodersen. Measuring needs-based quality of life and self-perceived health inequity in patients with multimorbidity: investigating psychometric measurement properties of the MultiMorbidity Questionnaire (MMQ) using primarily Rasch models. Journal of patient-reported outcomes. 2023, 7 (1): 94Cited : 2Read More
- 46)- Jason A Randall, Carolyn Sutter, Lydia Raither, Stella Wang, Evan Bailey, Riccardo Perfetti, Shoshana Shendelman, Claire Burbridge. Understanding the patient experience of Classic Galactosemia in pediatric and adult patients: increased disease burden, challenges with daily living, and how they evolve over time. Journal of patient-reported outcomes. 2023, 7 (1): 95Cited : 0Read More
- 47)- Jennifer Rhiannon Roberts, Catherine Anne MacLeod, Zoe Hoare, Mary Pat Sullivan, Emilie Brotherhood, Joshua Stott, Gill Windle. Development of an item pool for a patient reported outcome measure of resilience for people living with dementia. Journal of patient-reported outcomes. 2023, 7 (1): 96Cited : 0Read More
- 48)- Michelle M Ramirez, Mark H Shepherd, S Jacob Melnick, Cannon Hanebuth, Caroline Bazemore, Logan Couce, Steph Hendren, Maggie E Horn. Patient-reported outcome measures in physical therapy practice for neck pain: an overview of reviews. Journal of patient-reported outcomes. 2023, 7 (1): 97Cited : 0Read More
- 49)- Christel McMullan, Ameeta Retzer, Sarah E Hughes, Olalekan Lee Aiyegbusi, Camilla Bathurst, Alan Boyd, Jamie Coleman, Elin Haf Davies, Alastair K Denniston, Helen Dunster, Chris Frost, Rosie Harding, Amanda Hunn, Derek Kyte, Rebecca Malpass, Gary McNamara, Sandra Mitchell, Saloni Mittal, Philip N Newsome, Gary Price, Anna Rowe, Wilma van Reil, Anita Walker, Roger Wilson, Melanie Calvert. Development and usability testing of an electronic patient-reported outcome (ePRO) solution for patients with inflammatory diseases in an Advanced Therapy Medicinal Product (ATMP) basket trial. Journal of patient-reported outcomes. 2023, 7 (1): 98Cited : 1Read More
- 50)- Gry Assam Taarnhøj, Christoffer Johansen, Andreas Carus, Rikke Hedegaard Dahlrot, Line Hammer Dohn, Niels Henrik Hjøllund, Mark Bech Knudsen, Anders Tolver, Henriette Lindberg, Helle Pappot. The iBLAD study: patient-reported outcomes in bladder cancer during oncological treatment: a multicenter national randomized controlled trial. Journal of patient-reported outcomes. 2023, 7 (1): 99Cited : 1Read More
